Thank you for your interest in this Committee. The Ohio Sickle Cell Advisory Committee is currently undergoing restructuring under the direction of the Board of Directors. Keep checking back for updated information on how you can assist our organization and the families living with sickle cell disease.
In the meantime, the state of Ohio has a Rare Disease Advisory Council, of which our Executive Director, Annie J. Ross – Womack is an appointed Member. You can check out what the State Committee is discussing regarding Rare Diseases in Ohio. FYI – Sickle Cell Disease is the most common rare disease in the world.
Ohio Rare Disease Advisory Council